Consiglio Nazionale delle Ricerche

Tipo di prodottoPoster
TitoloReadability of current patient information leaflets for informed consent in UK radiotherapy centers
Anno di pubblicazione2016
FormatoElettronico
Autore/iRecchia, Virginia; Ferro, Marcello; Maglie, Rosita; Dodaro, Antonio
Affiliazioni autoriIFC-CNR; ILc-CNR; Università di Bari "Aldo Moro"; Medical Jurist and Independent Researcher
Autori CNR e affiliazioni
  • VIRGINIA RECCHIA
  • MARCELLO FERRO
Lingua/e
  • inglese
AbstractBackground: Guidelines on informed consent recommend the use of plain language and readability standards to enhance patient's comprehension, engagement and shared decision making. Aim: To assess the readability of current patient information leaflets (PILs) used for informed consent in radiotherapy. Methods: We evaluated PILs (n=38) from three radiation therapy centers in UK. They regard the most common radiation therapy techniques for different kinds of cancer and body disctricts, such as bladder, bowel, colo-rectum, brain, breast-chest, femal pelvis, prostate, lung, linphomas, stomach. We analyzed each text with Flesch-Kincaid (F-K) grade level, with higher numbers indicating harder-to-read text (from 0 = easy, to 25 = difficult). Then, we compared the related grade levels to the health literacy recommended standard of US grade level 5, indicating that patient education texts might be understood by a typical student in the US primary school. Results: Readibility is suboptimal for the analised PILs (red, green and blue points in the figure) and should be improved with respect to the international standard score (red dotted line in the figure). The results show a mean grade level equal to 8.1 (std = 0.8), thus suggesting the need of a 3-points decrease on average. Conclusion: Current PILs for informed consent in the three analised radiotherapy centers are hardly readable for the average patient. Although the readability scores achieved in the three centers is not very low, substantially higher readability scores should be achieved with novel PILs which explicitly discuss risks/benefits and other elements relevant for informed consent, and should be prepared by following standard recommendations of plain language.
Lingua abstractinglese
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Lingua altro abstract-
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Pagine totali1
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Verificato da refereeSì: Internazionale
Stato della pubblicazionePublished version
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Parole chiaveEthics and communication, Communicating Risk and Uncertainty, Health Literacy
Link (URL, URI)http://www.communication.aau.dk/research/dihm/events/comet2016/
Titolo convegno/congressoCOMMUNICATION, MEDICINE AND ETHICS CONFERENCE 2016
Luogo convegno/congressoAalborg, Denmark
Data/e convegno/congresso4-6/6/2016
RilevanzaInternazionale
RelazioneContributo
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Strutture CNR
  • IFC — Istituto di fisiologia clinica
  • ILC — Istituto di linguistica computazionale "Antonio Zampolli"
Moduli CNR
    Progetti Europei-
    Allegati
    • Readability of current patient information leaflets for informed consent in UK radiotherapy centers
      Descrizione: poster